I recently posted a CMT 101 type post to tell you all about my disability (disease, disorder, whatever you want to call it) called “What is CMT.” I wrote that post primarily because I wanted to write this one, but I felt you guys deserved an explanation of CMT first.
I am the member of several CMT groups online, and one day someone posted simply saying “You know you have CMT when…” and waited for the comments. Reading the thread of that post brought me so much joy. It was so refreshing for me to read things that are common in my life (and my family) happening to other people.
Now, before you think that’s mean of me to say, remember this: People with CMT live with it every single day. We learn how to live with what it does to our bodies, and many of us have accepted this as reality. So many people on the thread commented about how great it is to know there are others like them. If you know these everyday “mishaps” won’t change, isn’t it nice to know that you aren’t alone?